Tag Archives: data

Privacy and Security of Genetic Information: The FTC Is Putting Privacy and Security Promises of DNA Companies to the Test

In the FTC’s first case focused on the privacy and security of genetic information, the FTC alleges that San Francisco-based Vitagene, Inc. – now known as 1Health.io – failed to live up to its promises and unfairly changed material privacy terms without customers’ consent.

After consumers paid between $29 and $259, sent a saliva sample to Vitagene, and answered an online questionnaire about their health history,… More

The FTC Outlines What It Sees as “The HIdden Impacts of Pixel Tracking”

In a very comprehensive post from the Federal Trade Commission’s Office of Technology, the FTC takes what it calls “[a] deep dive into the technical side of FTC’s recent cases on digital health platforms, GoodRx & BetterHelp.”

As most readers know, the FTC recently took enforcement action against GoodRx and BetterHelp, two digital healthcare platforms, for allegedly sharing user health data with third parties for advertising.… More

China Adopts New Data Security Law

On June 10, 2021, China adopted a new Data Security Law that will impact every business operating in or doing business with China. The law, which will take effect in less than a month (September 1, 2021), is sweeping in scope, imposes extensive data processing obligations, and establishes potentially severe penalties for violations. Although many of the details surrounding implementation remain unclear, given the law’s extensive requirements and severe penalties for noncompliance,… More

China’s Internet Regulator Drafts COPPA-Like Rules for Children’s Data Privacy

In early June, the Cyberspace Administration of China released for public comment new draft regulations applicable to the collection of personal information relating to children under 14 by online service providers.

The draft regulations share many of the same structures as those utilized by the Children’s Online Privacy Protection Act (“COPPA”) in the United States:

  • online service operators will have to obtain parental consent based on a comprehensive disclosure about the collection,…
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Privacy and Data Security Strategies for Start-Up Companies

Start-up companies know that, when potential investors kick the tires, they will look carefully at the company’s business model and IP portfolio.  These days, investors are also likely to look at whether the company is in compliance with privacy and data security laws.  Cybersecurity has become increasingly important for business of all sizes.  While identity thieves may focus on the target rich environments of large-scale enterprises,… More

GDPR Creates Rugby Scrum

In a recent trip to Ireland, I was surprised to see two subjects that Ireland is known for — GDPR and rugby — coming into conflict.   As reported in the Sunday Business Post, World Rugby was lobbying the Irish government to create new data protection laws to address the interaction of anti-doping testing and the laws regarding transfer of data among and between different countries.  … More

California Amends its Consumer Privacy Act

On September 23, 2018, California Governor Jerry Brown signed into law SB-1121, a bill that makes several amendments to the Golden State’s landmark Consumer Privacy Act (“CCPA”). California enacted the CCPA in June after legislators reached a last-minute compromise with a group of privacy activists who would have put a more stringent data protection measure on the November ballot. Given the hasty enactment of the law,… More

Three Things Not to be Forgotten about the GDPR’s “Right to be Forgotten”

Our experience in advising clients about GDPR and assisting them in the compliance process is that there are often misconceptions about the so-called “right to be forgotten”. The purpose of this post is to address some of these misconceptions.

  • The “right to be forgotten” was not created by the GDPR

The GDPR replaced the EU’s 1995 Directive which provided in Article 12(b) that “Member States must guarantee every data subject the right to obtain from the controller: (…),… More